Carol's fundraiser for Wales Orphan and Rare Lung Disease

Carol New is raising money for Wales Orphan and Rare Lung Disease

Team: Team Steve (New Years Day Swim)

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New Years Day swim · 1 January 2025

promoting the awareness and understanding of rare lung disease by providing a forum for rare lung disease patients and their carers to meet and share experiences. Offer them support and signpost to relevant organisations. Engage health professionals to help improve diagnosis management of rare lung disease

Story

Hello,

On the 1st January, 4 of us, Myself, Sharon, Sarah and Luke will be taking part in the New Years Day in Saundersfoot, West Wales.

The reason behind the charity choice:

My son in law Steve was diagnosed aged 50 with a rare genetic disease that causes muscle wastage throughout the body.

This has resulted in him having type one respiratory failure requiring non invasive ventilation at night. As the years pass his respiratory function decreases.

WORLD raise funds to support people with pieces of equipment not available on the NHS. At present he is using a device loaned to him from WORLD that helps him exercise his lungs to try to reduce the speed of the deterioration.

Thank you for reading my page

Any Donation would be great for this great cause.

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Donation summary

Total
£160.00
Online
£160.00
Offline
£0.00

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