The Site Negotiation and Legal team within Cellnex UK will be walking, running, cycling and swimming the distance from Lands End to John O'Groats throughout the month of July in support of the Child Growth Foundation.
My name is Jess Dentry and I am a Delivery Manager within the Site Negotiation and Legal team at Cellnex. My fantastic colleagues have shown an interest in a group challenge and what better reason to do it than to raise money for an incredible charity!
The Child Growth Foundation is a charity close to my heart. My daughter Maeve was diagnosed with Russell-Silver Syndrome (RSS) when she was 8 months old, after months of worry about her not gaining weight or growing at a normal rate. Having the diagnosis and the information available from the Child Growth Foundation answered so many of our endless questions and worries and put me in contact with so many other wonderful parents of Children affected with rare growth conditions.
Russell-Silver Syndrome is a rare form of Primordial Dwarfism, characterised by slow growth both before and after birth. Typical symptoms include:
- Large head for body size, wide projecting forehead with a small triangle-shaped face and small, narrow chin
- Curving of the pinky toward the ring finger
- Failure to thrive, including delayed bone age
- Low birth weight
- Short height, short arms, stubby fingers and toes
- All or part of one side of the body is smaller than the other side (asymmetry)
- Stomach and intestine problems such as acid reflux and constipation
Despite these challenges, Maeve is incredibly resilient, bright and hilariously funny. Maeve learnt Makaton sign language from a very young age and continues to surprise us with her development in her gross motor skills and communication. She has recently started walking and is beginning to use spoken language. Now aged 2 1/2, with regular physiotherapy and speech therapy, as well as visits to a specialist clinic at Southampton General Hospital, Maeve is set to live a relatively normal life as a adult - although I'm more keen on her living an extraordinary life.
With thanks to donations and fundraising Child Growth Foundation:
-Supports children, adults and families affected by rare growth conditions.
-Funds research into greater understanding and management of these conditions.
-Raises awareness and understanding of growth conditions, to improve their detection and support their earlier diagnosis.
-Supports health professionals in the optimal diagnosis and management of these conditions.
We as a team will be hoping to cover the 1913km distance in the month of July and every penny we raise will go to support this fantastic charity supporting families with Children affected by growth disorders. Thank you in advance for your support and generosity.