This May, I am excited to participate in the EDS UK Dazzle Walk 2026, followed by the 3km Dock2Dock Swim in September, as personal challenges to raise vital funds for The Ehlers-Danlos Support UK. After more than 20 years of enduring chronic joint pain and searching for answers, I was finally diagnosed with hypermobile Ehlers-Danlos syndrome (hEDS) in September 2025. Although I was initially told I had 'benign joint hypermobility' back in 2004, it never fully explained the symptoms that have affected me for as long as I can remember.

Throughout EDS Awareness Month this May, I will be sharing insights about hEDS — what it is and how it impacts daily life. I warmly invite anyone who feels inspired to join me on the 5km Dazzle Walk (or more likely hobble) on May 24th - let me know you want to join me and I will share further details. Hypermobile Ehlers-Danlos syndrome (hEDS) is a complex genetic condition affecting connective tissues that support joints, skin, and organs. While people with hEDS often have very flexible joints, this flexibility can lead to frequent pain, instability, and injuries. Beyond joint issues, hEDS can cause chronic fatigue, dizziness, digestive problems, and challenges with everyday activities.

Because symptoms vary widely among individuals, diagnosis and management are often difficult. Currently, there is no cure for hEDS—making awareness, support networks, and research funding absolutely essential. Your generous donations will directly contribute to advancing research efforts, improving understanding of this condition, and providing much-needed support for those living with hEDS.

My fundraising target is £100 as I will be focusing more on raising awareness. Every contribution brings us closer to making a meaningful difference in the lives of many affected by this challenging condition. Please join me in supporting The Ehlers-Danlos Support UK by donating today - together we can illuminate hope and drive change.

If you have read this far, thank you for your support!