Story
On 6 June 2026, we are taking on the challenge of climbing snowdon! 🏔️
This special event launches Cavernoma Awareness Month and raises vital funds for Cavernoma Alliance UK (CAUK)
We are raising money for Cavernoma in support of a very special 5-year-old boy who has a rare brain disease, who has shown more strength and bravery than any child should ever have to.
Through uncertainty, hospital visits, and difficult days, this little boy continues to face everything with courage far beyond his years.
Suffering from sezuires, brain haemorrhages’ / bleeds in brain and the side effects can be difficult to process at times.
Every donation, no matter how small, helps raise awareness, fund research, and support families facing the same challenges.
Thank you from the bottom of our hearts for your kindness, generosity, and support 💙
For those who don't know what Cavernomas are...
Here is a small snippet for you.
A Cavernoma is a cluster of abnormal blood vessels in the brain or spinal cord, often described as looking like a raspberry 🍓. Their thin, leaky walls can bleed without warning, at any age.
Cavernomas are unpredictable.
While non-cancerous, they can lead to serious neurological issues if they bleed into surrounding brain tissue.
🩸 Brain haemorrhages
⚡ Seizures
🧍♀️ Neurological problems
Causing sezuires, headaches, strokes and weakness, Dysarthria (speech difficulty),
Problems can occur if the cavernoma bleeds or presses on certain areas of the brain.
Severe haemorrhages can be life threatening and may lead to long-lasting problems.
There’s currently no cure. Treatment options are limited to monitoring, neurosurgery or stereotactic radiosurgery. That’s why your support matters so much.
Cavernoma Alliance UK is a registered charity in England and Wales, number 1197257
