Story
As many of you will know, my wife and two young daughters all have Von Willebrand Disease (VWD). Despite being the most common of all bleeding disorders, our experience highlights the poor knowledge that even much of the medical profession have of the condition. Too often we have to explain to those that should be in a position of care what the disease is, and the relevant treatment protocols.
Thankfully awareness and knowledge is slowly beginning to increase but more needs to be done and The Haemophilia Society are doing a great job with this, across all bleeding conditions.
From the birth of my daughters and frequent bleeds and hospital visits over recent years, I have seen first hand the impact this condition can have on patients and their families. I hope I can play this small part in improving the future for my own family and all others that are impacted from related disorders.
More information on The Haemophilia Society can be found below.
Thank you in advance for all of your donations.
Chris
The Haemophilia Society (THS) is the only UK-wide charity for everyone affected by a genetic bleeding disorder. They are free to join and have more than 5,000 members.
One in 2,000 people in the UK have a diagnosed bleeding disorder, including conditions such as haemophilia and von Willebrand disorder, that result when the blood cannot clot properly. As many as a third of bleeding disorder diagnoses have no known family history, which means a diagnosis can come completely out of the blue.
THS campaign for what matters to their members, lobbying government, the NHS and clinicians to demand excellent care and safe, effective treatment, which is available to all.
