Lacey was diagnosed with Mitochondrial depletion disease within her TK2 Gene. This progressive disease and sadly Lacey passed away on the 14/2/2014 at just 2 years of age.

Lacey was never able to walk, eat or talk but she was a very intelligent little girl (or princess to her family) who made everyone she met smile. She could communicate by nodding, pointing, laughing, smiling, crying and doing her famous body dance. She taught everyone about love kindness and understanding.

In her beautiful memory we want to make a difference to all those affected by Mito, giving them support, understanding and ultimately a cure.

Every other day in the UK, a baby is born who may develop serious mitochondrial disease, yet currently there is no cure. Together with The Lily Foundation we can change this.