Lacey was born at 36 weeks (6lbs 4ozs) on the 22/11/11.

She grew strong and healthy, hitting all her milestones with ease (except she could not roll over or crawl).

Just before her first birthday she was admitted to Hospital with breathing complications and swollen difficulties . Lacey was allowed home on her birthday only to be rushed straight back in with a collapsed lung.

Subsequently she became unconsciousness and had to be incubated in PICU. After 10 weeks and numerous tests Lacey was allowed home but after only 3 weeks she was back into hospital where a huge decision had to be made. 1) Continue to try and get her off the vent (which had already failed 4 times) 2) An Emergency Tracheotomy 3) Palliative care – End of life treatment.

Lacey had a Tracheotomy and was ventilated 24/7 so was confined to one room, except for a couple of hours each day when she is on her “dry circuit” which allows Lacey to be transported from one room to another or even go for a walk in her buggy with the hospital’s portable ventilator.

Lacey was diagnosed with Mitochondrial depletion disease within her TK2 Gene. This progressive disease with no cure and sadly Lacey passed away on the 14/2/2014 at just 2 years of age.

Lacey was never able to walk, eat or talk but she was a very intelligent little girl (or princess to her family) who made everyone she met smile. She could communicate by nodding, pointing, laughing, smiling, crying and doing her famous body dance. She taught everyone about love kindness and understanding.

In her beautiful memory we want to make a difference to all those affected by Mito, giving them support, understanding and ultimately a cure.

Please join us by donating or taking on your own challenge in her memory.