David Evans and Sue Raven who are my wife's father and sister in law are abseiling off the national lift tower in Northampton to raise money for the lily foundation who are the charity connected with my long term health condition

Information about the Tower

The National Lift Tower based in Northampton is an iconic feat of architecture. At a staggering 418 feet, it is now the largest abseil tower in the world.

Information about The Lily Foundation

The Lily Foundation was founded in Lily's memory, having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today.

Did you know every twenty minutes a child is born who will develop Mitochondrial Disease by the age of 16! There is no cure for this disease which is for many, debilitating and life limiting.

Please stand with us and fight Mitochondrial Disease and fight for hope.

What is Mitochondrial Disease

Every other day in the UK, a baby is born who may develop serious mitochondrial disease, or ‘mito’. Mito is a complex and difficult-to-diagnose genetic disorder that can affect any organ at any time. It’s a cruel disease that impacts people in very different ways, often affecting babies and young children. The long-term prognosis for sufferers is poor, and there is currently no cure.

Mitochondrial dysfunction has been identified as a key factor in other, more common, diseases including dementia, Parkinson’s disease, epilepsy and cancer. The research The Lily Foundation funds and supports therefore has the potential to benefit not only patients of mitochondrial disease but millions of others too. That’s why, despite being a little-known condition, mitochondrial disease could be the key to some of the most important breakthroughs of our time.

Our mitochondria are essentially the tiny organelles within our cells that generate most of the energy we require to function. Without healthy mitochondria, cells cannot function properly; the results can be debilitating and eventually life-ending.