We are hosting another amazing Ruby Wren Fest for Team Ruby to give hope to all those effected by mitochondrial disease, especially our beautiful Ruby ❤️

Katie Clarkson Heidi Keates is raising money for The Lily Foundation

Great North Run 2025 · 7 September 2025 ·

Please join Team Ruby and help her and The Lily Foundation fund vital research into mitochondrial disease and support families just like hers who live with the disease everyday. You can donate or why not take on your own challenge

Story

Ruby Wren Marshall was born perfectly healthy on 24/02/21 and remained so until she was around 6 months old when she was found to be severely anaemic. Her bone marrow wasnt working well. It would be a further 5 months until she was diagnosed with Pearsons Syndrome; a mass deletion of her mtDNA.

This means some of her mitochondria in her cells (which provide the energy for the cells to work) do not work properly. As she grows the faulty mtDNA will start overpowering the healthy ones resulting in failure of her pancreas, followed by liver, kidneys, eyes, ears, heart, muscles and her brain.

Science can and will beat this, but it needs to be sooner and not later for Ruby, She just needs better batteries in her cells.

I have created this fundraiser to help - so please help me help Ruby, The Lily Foundation and all those with mito by donating today.

Everyday in the UK a child is born who will develop mitochondrial disease - we need to help them now.

Thank you for your support

Donation summary

Total
£2,499.15
+ £174.25 Gift Aid
Online
£697.00
Offline
£1,802.15

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