Ruby wren is an absolute delight and I take great pleasure in being a part of her life at pre school, she is a sassy, creative, amusing, bright and articulate little girl, but equally very poorly with regular trips to hospital which she seems to take in her stride as she does with life in general. This is the reason why I've chosen to do the great north run for this charity 😊❤️

Ruby Wren Marshall was born perfectly healthy on 24/02/21 and remained so until she was around 6 months old when she was found to be severely anaemic. Her bone marrow wasnt working well. It would be a further 5 months until she was diagnosed with Pearsons Syndrome; a mass deletion of her mtDNA.

This means some of her mitochondria in her cells (which provide the energy for the cells to work) do not work properly. As she grows the faulty mtDNA will start overpowering the healthy ones resulting in failure of her pancreas, followed by liver, kidneys, eyes, ears, heart, muscles and her brain.

Science can and will beat this, but it needs to be sooner and not later for Ruby, She just needs better batteries in her cells.

I have created this fundraiser to help - so please help me help Ruby, The Lily Foundation and all those with mito by donating today.

Everyday in the UK a child is born who will develop mitochondrial disease - we need to help them now.

Thank you for your support