Story
For Harrison and Ellie since their son Charlie’s diagnosis with PolG the Driffield Rugby Club has rallied around them like the big family we are. For 4 years Carlisle Rugby Club was a home and family away from home for Hollie and I.
So I couldn’t think of a better way to spread awareness of the charity who’ve helped Charlie the most and raise some much needed funds for them then a mammoth bike ride from Carlisle to Driffield. From club to club.
On the 8th August 2026 I’ll be riding 145 miles in one day, I haven’t ridden my bike for over 3 years and it’s been 8 years since I last road over 50 miles in on go. So this going to be pretty rough.
Please read below to hear about Charlie and his family.
Furbs ✌️
In July 2025, our lives changed forever when our 11-month-old son, Charlie, was diagnosed with PolG mitochondrial disorder—a rare and degenerative disease with no cure and no effective treatments.
Faced with this devastating reality, we made a choice: to fight for hope. We are determined to channel our love for Charlie into a force for change, funding the research that can build a future where no family hears the words, "there is no cure."
We are delighted to be working with the Noah Jordan Foundation as one of Charlie’s charities, to achieve our shared mission: to accelerate research and find effective treatments, and ultimately a cure, for PolG mitochondrial disorders.
Harrison, Ellie, Wilson & Charlie x
The Noah Jordan Foundation (RCN 1208933)
Website: www.tnjf.org.uk
Instagram: https://www.instagram.com/noahsfoundation/
Facebook: https://www.facebook.com/share/1BG4We5jFW/?mibextid=wwXIfr
