Team Charlie

We share Charlie's story to support 'The Noah Jordan Foundation' in hope of raising vital funds for much needed medical research, to raise awareness and to build a community for those families, like ours, affected by mitochondrial disease.

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The Noah Jordan Foundation funds research, to develop treatments and find a cure, for rare terminal Paediatric Mitochondrial Diseases. The Charity also raises awareness of these rare diseases and supports those affected.

Story

For Charlie, we stomp...

In July 2025, our lives changed forever when our 11-month-old son, Charlie, was diagnosed with PolG mitochondrial disorder—a rare and degenerative disease with no cure and no effective treatments.

Faced with this devastating reality, we made a choice: to fight for hope. We are determined to channel our love for Charlie into a force for change, funding the research that can build a future where no family hears the words, "there is no cure."

We are delighted to be working with the Noah Jordan Foundation as one of Charlie’s charities, to achieve our shared mission: to accelerate research and find effective treatments, and ultimately a cure, for PolG mitochondrial disorders.

Harrison, Ellie, Wilson & Charlie x

The Noah Jordan Foundation (RCN 1208933)

Website: www.tnjf.org.uk

Instagram: https://www.instagram.com/noahsfoundation/

Facebook: https://www.facebook.com/share/1BG4We5jFW/?mibextid=wwXIfr

LinkedIn: https://www.linkedin.com/company/thenoahjordanfoundation

Donation summary

Total
£2,997.34
+ £675.75 Gift Aid
Online
£2,997.34
Offline
£0.00
Direct
£408.00
Fundraisers
£2,589.34

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