Story
For Charlie, we stomp...

In July 2025, our lives changed forever when our 11-month-old son, Charlie, was diagnosed with PolG mitochondrial disorder—a rare and degenerative disease with no cure and no effective treatments.
Faced with this devastating reality, we made a choice: to fight for hope. We are determined to channel our love for Charlie into a force for change, funding the research that can build a future where no family hears the words, "there is no cure."

We are delighted to be working with the Noah Jordan Foundation as one of Charlie’s charities, to achieve our shared mission: to accelerate research and find effective treatments, and ultimately a cure, for PolG mitochondrial disorders.
Harrison, Ellie, Wilson & Charlie x

The Noah Jordan Foundation (RCN 1208933)
Website: www.tnjf.org.uk
Instagram: https://www.instagram.com/noahsfoundation/
Facebook: https://www.facebook.com/share/1BG4We5jFW/?mibextid=wwXIfr
LinkedIn: https://www.linkedin.com/company/thenoahjordanfoundation
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