Story
I will be running/walking or maybe even swimming 5K every day in May!
My goal is to raise money and awareness for Dravet Syndrome UK. My cousin Etta has Dravet Syndrome and I want to help as much as possible. Here is a link to Etta's story and a video about her and her family: https://www.dravet.org.uk/stories/etta/
Dravet Syndrome is a rare neurological condition. Around 1 in every 15000 babies in the UK are born with Dravet Syndrome. It causes severe seizures and other difficult conditions. There is no cure but there are new medications and treatments being researched which your donations will help.
Thanks, Isaac
