Every Day in May for Dravet is back for its 6th year!

Supporter Tamara ‘Tats’ Ward, was inspired to set up the Every Day in May for Dravet challenge in 2021 when she was unable to visit her seven-year-old nephew Dominic, who lives with Dravet Syndrome during Covid.

Since 2021, the event has grown tremendously, from 40 participants that first year to 500 adults and children taking part in 2025 located all over the UK, raising a phenomenal almost £500,000 since it started, helping Dravet Syndrome UK to support more families, educate more professionals and fund more research

Get involved

The challenge is to walk, run, swim or cycle 5km or 2km each and every day in the month of May. You can do it however, whenever and wherever suits you and mix it up as much as you like!

Do it alone or share the load with a team of friends and family. It's entirely up to you!

We will help keep you motivated throughout with WhatsApp groups and Spotify playlists as well as provide lots of support to help reach your fundraising goal.

This year, we're hoping to smash our 2025 success with even more participants raising even more awareness and funds!

To get involved this May, you can find all the details and register here.

If you're unable to take part, donations to spur on this mighty team are very much appreciated - just click 'Give Now' on the top right of this page. Thank you!

Thank you so much to everyone who donates, cheers from the side lines, and to everyone who takes part. You are all inspirational humans and we're so very grateful for your support.

You can find out more about Dravet Syndrome UK's vital work at www.dravet.org.uk or email us everydayinmay@dravet.org.uk and we'll get back to you soon.