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Trisomy Awareness Month

Jacqui Lowrie is raising money for SOFT UK
In memory of Charley coxson lowe

21 day retreat · 1 January 2027

This year SOFT UK are inviting our incredible community to take part in different fundraising activities that involve you and your family. Choose 13 or 18, Do something meaningful Support families affected by Trisomy 13 & 18

Story

13 & 18 for SOFT UK

I’m taking part in 13 & 18 for SOFT UK for Trisomy Awareness Month.

Trisomy 13 (Patau syndrome) and Trisomy 18 (Edwards syndrome) are rare genetic conditions caused by an extra chromosome. Families affected by these conditions often face uncertainty, complex medical journeys, and in many cases, heartbreak and loss.

SOFT UK is the national charity supporting families affected by Trisomy 13 and Trisomy 18. They provide trusted information, peer support, family connection, and bereavement support — ensuring that no family faces this journey alone.

For this challenge, I’ve chosen to do 13 / 18 in support of children and families affected by Trisomy.

Every donation, no matter how small, helps SOFT UK to:

💜 Support families from diagnosis onwards

💜 Provide peer and bereavement support

💜 Create community and connection

💜 Raise awareness and understanding

💜 Educate healthcare professionals

Trisomy Awareness Month is about showing that every life matters.

Donation summary

Total
£30.00
+ £7.50 Gift Aid
Online
£30.00
Offline
£0.00

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