My sister Emmy was diagnosed with Bardet-Biedl Syndrome (BBS) in 2008. BBS is a rare genetic condition that affects multiple body systems. It's characterised by a range of symptoms, including vision loss, obesity, extra fingers or toes, learning difficulties, and kidney abnormalities.

The charity BBS UK provide support to those with BBS and their families something me and my family have experienced over many years.

I'm raising money to support BBS UK in the amazing work they do in the hope they can continue to help families like mine and individuals like my sister going forward.

James