Story
This April and May, I am taking on a massive personal challenge to support Dravet Syndrome UK in honor of my 18-month-old grandson. Vinnie was born with the SCN1A gene mutation, a rare neurological condition that causes prolonged, life-threatening seizures and complex comorbidities. To raise vital funds and awareness, I’ll be kicking things off this April with a cycle to France 400 miles, followed immediately by the "Every Day in May" challenge completing 5km/3miles every single day. Every mile pedaled and every day of movement is dedicated to Vinnie and all the families navigating the realities of Dravet Syndrome. Your support helps provide the equipment, research, and community care that these "superheroes" and their families so desperately need. Thank you for your support.
