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Jason's fundraiser for The Maddi Foundation

Jason Catley is raising money for The Maddi Foundation
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Sea to Summit: Scafell Pike 2024 · 28 September 2024 ·

The Maddi Foundation is a non profit charity which was founded by the family of a young teenage girl “Maddi” who in 2016 was diagnosed and started battling Spastic Paraplegia Type 15 (SPG15), a degenerative neuro disease. Symptoms present themselves generally in early teens causing paralysis in the limbs with progressive brain abnormalities resulting in loss of nerve cells, visual impairment and possible juvenile Parkinson's. This is a genetic type of motor neuron disease. To date there is no cure or treatment! Conditions this rare receive very little attention and funding so with your help we can try to change this so our children can have a brighter future. The Maddi Foundation aims to continue to support medical research to help cure this disease and also help other similar rare diseases.

Story

This September I am taking part in an Ultra Marathon of 31 miles that includes the small obstacle of going up and down Scafell Pike half way through.

I've decided to use this challenge as an opportunity to fundraise for The Maddi Foundation, a charity close to the heart of a good friend and colleague.

The Maddi Foundation has a commitment to advance research and develop gene therapy for the rare genetic disease, Spastic Paraplegia 15 (SPG15).

Thanks for taking the time to visit my JustGiving page.

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Donation summary

Total
£2,094.80
+ £448.00 Gift Aid
Online
£2,094.80
Offline
£0.00

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