On 19th March 2025, our lives changed forever when we lost our beautiful niece, Daisy, at just four years old. Daisy was full of light, laughter, and a spirit far bigger than her tiny years.

Only a few months before we lost her, Daisy was diagnosed with mitochondrial disease — a rare and devastating condition that affects how the body produces energy. The diagnosis came as an overwhelming shock to our family, and everything changed in such a short space of time.

Daisy sadly passed away while on holiday in Portugal, making an already heartbreaking loss even more sudden and unimaginable. Despite everything she faced, Daisy continued to shine with bravery and happiness, leaving an unforgettable mark on everyone who knew and loved her.

Louise (Daisy’s other auntie) and I are taking on the 25km Ultra Challenge to honour her life and keep her memory alive. Every step we walk is for her — for the smiles she gave us, the memories we treasure, and the hope that other families may one day be spared the same heartbreak.

We are raising money for The Lily Foundation, a charity dedicated to supporting families affected by mitochondrial disease and funding vital research into diagnosis, treatment, and ultimately a cure. After learning more about mitochondrial disease through Daisy’s journey, we want to help raise awareness and contribute to the work that supports other children and families facing this devastating condition.