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Daisy Shines

Our amazing, strong little girl Daisy left a profound impact on the lives of everyone she met. Our hearts are shattered that she has gone but we are determined to honour her legacy by helping The Lily foundation find a cure for mitochondrial disease.

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Our vision is for a world in which every mitochondrial disease patient has a voice and access to treatment, support to improve their life and, ultimately, a cure.

Story

On 12 December 2020, our precious Daisy came into the world, filling it with light. Born with hip dysplasia in her right hip, she faced challenges from the very start. As she grew, Daisy’s journey became even more complex—at the age of 3, she began experiencing eye problems and developed anxiety over the simplest things. Loud noises unsettled her, and tremors in her little body soon followed.

In December 2024, an MRI revealed troubling grey areas on Daisy’s brain and brainstem. Countless tests followed, and on 20 January 2025, Daisy was diagnosed with mitochondrial disease (MT-ND5). Despite the difficulties, Daisy continued to shine, her strength and spirit inspiring everyone around her. She adored hot chocolates, sweet treats, and was known for her delightful sassiness.

While enjoying a family holiday abroad in March 2025, Daisy’s fight came to an end, and she passed away. Our amazing, strong little girl left a profound impact on our lives. Though our hearts are shattered, we are determined to honour Daisy’s legacy by helping to find a cure for this cruel disease.

Though our hearts are shattered, we are determined to honour Daisy’s legacy by helping to find a cure for this cruel disease.

Donation summary

Total
£11,105.10
+ £392.03 Gift Aid
Online
£1,773.10
Offline
£9,332.00
Direct
£0.00
Fundraisers
£1,773.10

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