My daughter sadly suffers with Rett syndrome. When she was diagnosed at the age of 2, my world fell apart. The pain was indescribable and the loneliness was overwhelming. I felt at the time that there was no hope and I just had to make every second count before my daughter passed. And then I found Reverse Rett. I learnt very quickly that there is hope, and that I’m not alone.

Reverse Rett fund vital research for a cure and treatments for Rett syndrome. Rett syndrome receives no government funding as it is classed as a rare disease. A cure or life changing treatment is on the horizon but they need vital support to continue the studies and bring the treatments when available, to uk sufferers.

As I delved further into reverse Rett, I discovered the founders, Racheal and Andy, were also parents to children with Rett themselves. I remember thinking to myself, these people must be super human. I have donated and raised as much as I can over the years but it is still nothing compared to what Racheal does. The fight in her is incredible, I feel I am indebted to her. She has given me hope on the darkest of days. She is selflessly driving for a cure for all Rett girls, not just her own.

Rachael is turning 50 this year and in honour of her 50th she has asked 50 friends to raise money for Reverse Rett (selfless again) and I would absolutely love to raise some funds in honour of Racheal, to say a direct thank you, for relentlessly searching and funding for a cure, being a beacon of light during my dark days and contributing to the possibly that my daughter could one day be free.

If you would like to enter our gardening competition, to win £150 worth of gardening, please donate £5 on here and leave your name and contact number. You can enter as many times as you like. Closing date: 25th May, 25. Winner announcement: 27th May, 25.

A note from reverse Rett:

The UK Rett Syndrome community is at a pivotal moment at the moment with two clinical trials of gene therapies underway.

Much is required of our small, rare disease organisation at this time. At Reverse Rett, we are packing a mighty punch in accelerating disease-modifying treatments for Rett syndrome but we need your support to keep our work going.