Harry's Hydrocephalus Awareness Trust (Harry's HAT) was founded by the family and friends of baby Harry. After Harry was diagnosed his parents learnt that there was no cure for hydrocephalus. Only invasive surgery and, in Harry's case, the insertion of a permanent shunt.

Harry's family & friends wanted to change this so formed the charity. The charity's primary aim is to make life better for children with hydrocephalus and families who love and care for them.