I'm moving 100 miles in July for NKH Research!

I’m doing this for my beautiful son Teo who many of you know was born with NKH I’m doing this for Kai who we love so much who heartbreakingly passed away from NKH last year. I’m doing this for all of our NKH babies who deserve a cure. A cure is in hands reach but it’s not here yet so we don’t stop fundraising. Not until we have a cure here to save these babies lives to give them a pain free life and change to develop every child deserved a chance.

I'm doing the NKH 100 Mile Virtual Challenge - it's 100 Miles along the Thames Path – Streatley to Sea! Because Nonketotic Hyperglycinemia (NKH) is a rare and terminal neurometabolic disorder that affects children - and we want to give them hope for a future.

Please donate, so we can make real change! A future for children with NKH starts with us. Please donate generously!