Nick and I usually support World Haemophilia Day with some sort of exercise based challenge. Due to my lungs still struggling with the after effects of Covid 6 months on, I am not in a position to do a challenge justice at the moment and Nick is a bit behind in training for another race at the moment so needs to stick to his training plan where possible over the next couple of months. So it is over to the girls to do the fundraising this year. Anybody who knows these girls knows Ella spends most of her time running bouncing and skipping, and Leah is similar although cartwheeling has also been thrown into her mix recently. On 16th April, which is the day before World Haemophilia Day, they are going to take part in their first junior parkrun - jogging, walking, skipping and possibly an occasional cartwheel thrown in. This is a 2k timed event at Heavitree Pleasure Ground. We have tried to do a few jog/walk/skips together over the last week and although 'only 2k' this is a big distance for a 7 and 4 year old who aren't used to distance training. They have stood around at lots of running events in the past either helping out or supporting us parents and Leah is quite keen on the idea of a banner supporting them and people cheering for them. If anybody could donate to this cause we would really appreciate it and if anybody wants to come along wearing red to support them it would be great. As most people know Ella's prophylaxis has been lifechanging but as seems the case with most lifelong conditions challenges are still thrown when we least expect them. I hold out hope for the day a longer term treatment is found and we don't have to administer medication via a port every other day. Medical science has come a long way in a few decades, and I hope it continues to do so during Ella's lifetime so things get better for her and others with her condition. Let's support this great charity and the work they do.