We will be running the 10K, part of the New Forest marathon on 14th September 2025 for Brice and to spread awareness.

Brice was born in June 2024, a beautiful, strong blue eyed boy. Brice joined his family loved, as a little brother to his big sister Hope, and with many hopes and dreams for a long, thriving life for him.

Brice stopped putting on weight and after a few trips to the GP he was sent to the Paediatric assessment unit in December. Blood tests showed raised lactate and an MRI showed shadows on his brain. Along with regression of skills and weight loss the diagnosis for Mitochondrial disease began.

Brice spent most of the next 3 months and was diagnosed with Leighs syndrome. A few weeks later sadly passed away on March 2025, 5 days shy of being 9 months old.

The space he's left can never be filled and more needs to be done to stop this cruel disease breaking hearts and taking beautiful children before their time.

Please donate if you can to help us help The Lily foundation make a difference in his memory.

Every other day in the UK, a baby is born who may develop serious mitochondrial disease. The Lily Foundation was founded in 2007 by Liz Curtis in memory of her daughter Lily, who died from mito at just 8 months old. Finding little information or support to help her, Liz set out to provide answers for herself and others in her situation. The charity exists today to support affected patients and families, raise awareness of this little-known but incurable genetic condition and fund research into treatments and an eventual cure.