Brice was born the most beautiful blue eyed boy. He started his life strong and thriving. His smile and giggles lite up the room. He was and is so loved by his big sister Hope and his parents Joanne and James.

Unfortunately at 4 months old he started to regress, lose weight and muscle tone. At 6 months he began investigations for mitochondrial disease and at 8 months was diagnosed with Leigh Syndrome.

His tone decreased, seizures and dystonia increased and our boy quickly deteriorated in front of us. There was nothing that could be done to save him.

Just before he turned 9 months old he passed away. We don't have enough memories with him, he didn't get a chance to have the life he should have done. This should not be the fate of any baby or family.

We miss him everyday and imagine how he would be running around after his big sister now if he was still here. Brice deserved the chance to grow, play, learn, fall in love and follow his dreams.

He will always be with us, but that won't ever be enough. We are so grateful for the support from the Lily foundation as well as their passionate fight to help fight this cruel disease.