Maisie's fundraiser for Ehlers-Danlos Support UK

Maisie Kiff is raising money for Ehlers-Danlos Support UK
“Ehlers Danlos and HSD awareness month 2025”

on 24 May 2025

Don your razzliest, dazzliest zebra attire this May and join the EDS UK Dazzle Walk 2025.

Story

Over the past 2 and a half years, I have faced ongoing health challenges and have been diagnosed with multiple chronic conditions, including hypermobile spectrum disorder (HSD). As I await genetic testing to rule out a rarer genetic condition, I reflect on the significance of May 2025. This date not only marks my 17th birthday—an achievement I once doubted I'd reach—but also two years since my health first declined and one year since it hit an all-time low during my GCSEs.

In the last six months, I have dedicated myself to strengthening my body and striving for a sense of normalcy . Transitioning from relying on a wheelchair due to severe muscle spasms and dislocations to walking over 10 K on multiple occasions is a testament to my resilience and determination.

Throughout this journey, I have been fortunate to have unwavering support from family and friends. However, two individuals stands out as my greatest allies. My best friend Darcy and my mum Kate. Without them I would have never been able to get through any of it.

Together, we are excited to announce that on the 24th of May 2025, we plan to complete a challenging 20-kilometer hike around the stunning Purbecks in Dorset. This endeavor is not just about achieving a personal milestone; it is also an opportunity for me to give back to Ehlers-Danlos Support UK—a charity dedicated to researching conditions that affect me and many others.

I invite you to join us in this mission by supporting our fundraising efforts. Our target is £250, which will directly contribute towards vital research and support for those living with Ehlers-Danlos syndrome. Your generosity can make a difference in our lives and the lives of countless others facing similar challenges.

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Donation summary

Total
£502.00
+ £80.00 Gift Aid
Online
£502.00
Offline
£0.00

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