Earlier this year my partner was diagnosed with SHOX deficiency, a rare genetic condition that affects bone growth and height. Since receiving the diagnosis, we’ve also learned that it’s very likely our son will have the condition too.

This has made the cause incredibly personal for our family. Access to research, support, and better awareness can make a huge difference to families like ours who are navigating the medical, emotional, and practical challenges that come with growth disorders.

With thanks to donations and fundraising Child Growth Foundation:

-Supports children, adults and families affected by rare growth conditions.

-Funds research into greater understanding and management of these conditions.

-Raises awareness and understanding of growth conditions, to improve their detection and support their earlier diagnosis.

-Supports health professionals in the optimal diagnosis and management of these conditions.

Thank you so much for supporting this effort and helping make a difference.