Duchenne muscular dystrophy (DMD) is a devastating and progressive muscle-wasting condition. Diagnosed in childhood, it mainly affects boys.

The affected child might have difficulty jumping, running, and walking. Later on, the heart and respiratory muscles are affected as well.

Started by families affected by the disease, Duchenne UK is the leading DMD charity in the UK. It connects the best researchers with industry, the NHS, and families to advance and accelerate every stage of drug development and access to medicines and support.

Duchenne UK is a fantastic charity that supports those affected by this horrific condition. They try hard to get everyone involved in finding new treatments and helping these kids, their families, and their carers.

Many medicines for this condition fail to get a marketing authorisation, and fewer achieve reimbursement. Duchenne UK tries to get those that do get a marketing authorisation to patients, not just in the UK but globally. I have supported their work for many years.

Together, we will end Duchenne.

My friend Mike (who has connections to a family with a boy with DMD) and I are doing this walk to support Duchenne UK.

Mike and I have previously completed several endurance events, such as 100+ miles over the South Downs nonstop.

Just after sunrise on July 18th, 2025, we will start and, over 50 hours, undertake to walk the entire route of the Anglesey Coastal Path, some 130 miles (over 200km) on an unsupported basis, starting and finishing by the Menai Bridge. There will be short breaks for meals and the replenishment of resources, but this is definitely not a "bimble."

Please donate generously to help make this happen and enable us to continue progressing towards a different future for all those affected by this disease and their families.

Every penny raised will go to Duchenne UK to support their work and those impacted by DMD.

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