There has been a bit of a hiatus in my fundraising for Duchenne as I have had some health challenges to deal with, the most significant of which is slowly causing my kidneys to fail.

As a result, this 50km night walk is a huge challenge for me. I would love some encouragement along the way and will do everything I can to get to the end of the walk. I'm extremely nervous but determined to continue to help Tom and the other boys out there with Duchenne.

Duchenne muscular dystrophy (DMD) is a devastating muscle-wasting disease. It is the most common and severe form of muscular dystrophy. Diagnosed in childhood, it mainly affects boys. Started by families affected by the disease, Duchenne UK is the leading DMD charity in the UK: connecting the best researchers with industry, the NHS and families to advance and accelerate every stage of drug development. Together, we will end Duchenne.