When Lucas was 4. Mum (my best friend kirsty) instinct on a few generally unnoticeable things led her to Google one night.... a night she will never forget. Her doctor made her feel better as Duchenne Muscular Dystrophy (DMD) is so rare, she was comforted that it was very unlikely to be that, but would be sent for tests just in case. Their worst nightmare then came true. There are no words to describe the following months. However, kirsty and her boys have the best possible family and friends to support us them. She is a single mum who is also an incredible women raising her 2 boys alone and giving them the best life, even in her circumstances.

Those that know Lucas know he is a VERY strong willed little man (sometimes a bit too strong-willed!). He amazes me everyday with all he achieves. He knows he can’t run as fast or jump as high as his friends, but that doesn’t mean he doesn’t try! His determination is a gift that will be invaluable for him as he grows up.

A DMD diagnosis is so different now to what it was ten years ago, there is real hope that this cruel and unfair condition can and will be cured!

Lucas, his younger brother Sammy and Kirsty, along with their amazing family and friends, are fighting to make this dream cure a reality by raising as much money as we possibly can! And your support, no matter how big or small, will help to make a real difference.