Our journey began when Lucas was 4. Mum instinct on a few generally unnoticeable things led me to Google one night.... a night I will never forget. My doctor made me feel better as Duchenne Muscular Dystrophy (DMD) is so rare, I was comforted that it was very unlikely to be that, but we would be sent for tests just in case. Our worst nightmare then came true. There are no words to describe the following months. However, me and my boys have the best possible family and friends to support us and I am forever grateful for them.

Those that know Lucas know he is a VERY strong willed little man (sometimes a bit too strong-willed!). He amazes me everyday with all he achieves. He knows he can’t run as fast or jump as high as his friends, but that doesn’t mean he doesn’t try! His determination is a gift that I believe will be invaluable for him as he grows up.

A DMD diagnosis is so different now to what it was ten years ago, there is real hope that this cruel and unfair condition can and will be cured!

Lucas, his younger brother Sammy and I, along with our amazing family and friends, are fighting to make this dream cure a reality by raising as much money as we possibly can! And your support, no matter how big or small, will help to make a real difference x