I am taking part in the NKH 100 Mile Virtual Challenge! In July 2024, for the month.

In memory of Eleni Shaw, who passed away aged 3 years old on April 26th 2023.

All proceeds raised go towards NKH Research.

Nonketotic Hyperglycinemia (NKH) is a rare and terminal neurometabolic disorder that affects children. It means they can't process glycine, which is a neurotransmitter. Toxic levels of glycine cause the neurones to overfire and die, causing brain damage and severe disability. It's also life limiting - 80% of children diagnosed with NKH don't see their first birthday.

The Mikaere Foundation supports Prof Nick Greene at UCL in London, who is the closest to a clinical trial for gene replacement therapy - a treatment which would radically improve the quality of life of kids with NKH.

Please help us fund a cure!