I'm moving 100 miles in July for NKH Research!

As most of you know our granddaughter Freya has NKH so we need to do as much as we can to help them find a cure….

I’m unfit so 100 miles for me will be a challenge !! Thank you all in advance

I'm doing the NKH 100 Mile Virtual Challenge - it's 100 Miles along the Thames Path – Streatley to Sea! Because Nonketotic Hyperglycinemia (NKH) is a rare and terminal neurometabolic disorder that affects children - and we want to give them hope for a future.

Please donate, so we can make real change! A future for children with NKH starts with us. Please donate generously!