Elly Hulance

The NKH 100 Mile Challenge!

Fundraising for The Mikaere Foundation
raised of £1,000 target
by 16 supporters
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Elly's NKH 100 Mile Challenge!
The Mikaere Foundation

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RCN 1200720
We support families living with NKH to fund research and raise awareness


Get moving with the NKH 100 Mile Virtual Challenge! I'm moving 100 miles across April as part of this challenge, for my boy who has NKH.

Nonketotic Hyperglycinemia (NKH) is a rare and terminal neurometabolic disorder that affects children. It means they can't process glycine, which is a neurotransmitter. Toxic levels of glycine cause the neurones to overfire and die, causing brain damage and severe disability. It's also life limiting - 80% of children diagnosed with NKH don't see their first birthday.

The Mikaere Foundation supports Prof Nick Greene at UCL in London, who is the closest to a clinical trial for gene replacement therapy - a treatment which would radically improve the quality of life of kids with NKH.

Please help us fund a cure!

About the charity

The Mikaere Foundation

Verified by JustGiving

RCN 1200720
The Mikaere Foundation supports families with children who have Nonketotic Hyperglycinemea. We raise awareness, connect families and fund research into NKH treatment. We bring hope and build futures for NKH kids.

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