Get moving with the NKH 100 Mile Virtual Challenge! I'm moving 100 miles across April as part of this challenge, for my boy who has NKH.

Nonketotic Hyperglycinemia (NKH) is a rare and terminal neurometabolic disorder that affects children. It means they can't process glycine, which is a neurotransmitter. Toxic levels of glycine cause the neurones to overfire and die, causing brain damage and severe disability. It's also life limiting - 80% of children diagnosed with NKH don't see their first birthday.

The Mikaere Foundation supports Prof Nick Greene at UCL in London, who is the closest to a clinical trial for gene replacement therapy - a treatment which would radically improve the quality of life of kids with NKH.

Please help us fund a cure!