May 2nd is NKH Awareness Day - we're asking instead of your daily flat white, or chai mocca latte, please swap your coffee today for a donation towards NKH Research.

Please. Please donate. £3. £5. £15. Whatever you are able.

We're raising funds for an effective treatment, for NKH Gene therapy, for a CURE that would mean less seizures, less pain, less death.

Here’s what I can tell you. NKH is brutal and horrific and children are suffering.

But your funds are making a difference. In the last year, there has been:

- Several new published papers, and studies into TWO potential new treatment compounds

- Better understanding of how NKH works. Specifically, at how glycine metabolism in the brain/liver affects neuromuscular function, and how NKH changes specific brain structures, across the five different mice models (including AMT!).

- The FIRST NKH patient information booklet released into hospitals.

You GUYS! Every donation is enabling real research and support! Research that has the potential to improve children’s lives dramatically. Our children's lives!

So please donate today. Please go out and tell someone about NKH.

Children with NKH are suffering, and they deserve a future, and together, we're working on getting them one.

Happy NKH Awareness Day. Thank you for being in our corner. We love you.

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The Mikaere Foundation is an NKH Charity, who funds research by Prof. Nick Greene and his team at UCL, and Prof. Johan van Hove at the University of Colorado.

More about the Mikaere Foundation at mikaerefoundation.org