Every other day in the UK, a baby is born who may develop serious mitochondrial disease. The Lily Foundation was founded in 2007 by Liz Curtis in memory of her daughter Lily, who died from Mito at just 8 months old. Finding little information or support to help her, Liz set out to provide answers for herself and others in her situation. The charity exists today to support affected patients and families, raise awareness of this little-known but incurable genetic condition and fund research into treatments and an eventual cure.

With friends having suffered absolutely devastating losses of their young children I have decided to set myself the challenge of running a full marathon for the very first time and at very close to the age of 60 (oh do wish me luck!) to help raise vital funds to assist this brilliant charity, so really hoping you can support us both by means of donation and in turn strength and motivation to get across that finishing line!!

Thanks in advance everyone xx