Sharon's fundraiser for Wales Orphan and Rare Lung Disease
Sharon Jones is raising money for Wales Orphan and Rare Lung Disease
Story
Hello,
On the 1st January, 4 of us, Myself, Sarah, Luke and Carol will be taking part in a New Years Day swim located in Saundersfoot Wales.
The reason behind the charity choice:
My husband, Steve, was diagnosed aged 50 with a rare genetic disease that causes muscle wastage throughout the body.
This has resulted in him having type one respiratory failure requiring non invasive ventilation at night. As the years pass his respiratory function decreases.
WORLD raise funds to support people with pieces of equipment not available on the NHS. At present he is using a device loaned to him from WORLD that helps him exercise his lungs to try to reduce the speed of the deterioration.
Thank you for reading my page
Any Donation would be great for this great cause.