Story
Sam’s Superheroes Foundation is the UK's only registered charity focused on improving outcomes for people affected by the RARE EPILEPSIES NORSE and FIRES.
These conditions are very different from typical epilepsy. They strike suddenly, in previously healthy children and adults with no seizure history, often following what appears to be a mild virus. The seizures are aggressive, continuous, and extremely difficult - often impossible - to stop. With no cure, no identifiable cause, and no effective treatments, the impact on individuals and families is frequently devastating.
We want to change this. Sam’s Superheroes funds and advocates for vital research, raises national awareness, and supports families facing NORSE and FIRES.
