I will be fundraising for Bardet-Biedl Syndrome UK as my Step daughter has been diagnosed with BBS, I want to help with the research and the support that is given to families.

Bardet-Biedl Syndrome UK is the only registered charity supporting people with Bardet-Biedl Syndrome (BBS), their families and carers in the UK. We are a user led organisation, represented by adults with BBS and parents of children with BBS.

We support over 640 people diagnosed with BBS and their families; along with professionals involved in all aspects of the care and support of people with BBS in the UK.

Our vision is for people with Bardet-Biedl Syndrome to understand their condition, to feel valued and to thrive.

Any amount you can give would be truly appreciated.

Thank you for your help.

steven Charles