Thanks for taking the time to visit my JustGiving page.

I am completing the Lake District Ultra Challenge to raise funds and awareness for Reverse Rett and my youngest daughter Penny.

Penny is 7 years old and has Rett syndrome. Up until she was 1 year old, she was developing like a normal little girl. Things changed and her development stopped and went into reverse.

Shuffling around on her bottom, stopped and turned into rocking back and forth in one place.

Babbling of a 1 year old ceased to exist.

The ability to try and feed herself and grasp food stopped almost overnight.

Penny is unable to do any of the things a normal 7 year old can do. She does not have the ability to talk, but communicates through her eyes and will always have a smile for those who meet her.

Penny requires help with all the basics:- eating, washing, drinking and we push her in a wheelchair/specialist chair to move around inside and outside our home.

What is Rett Syndrome?

Rett Syndrome is a neurological condition which most often strikes previously healthy little girls between their first and second birthday, leaving them with multiple disabilities and medical complexities for life.

Penny is the 1 in 10,000 that is affected by Rett Syndrome.

Reverse Rett is a patient advocacy and research organisation working to deliver treatments and a cure for Rett Syndrome to everyone affected.

Clinical trials of gene therapy have just been approved by the UK regulatory authorities. with your donation, and the help of Reverse Rett, we hope to find a cure for Penny and ‘Reverse Rett’.

Thank You!