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The Reverse Rett Lakers 25

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Raising money for Reverse Rett

Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Story

The Reverse Rett Lakers will be taking on the Lake District 100k Ultra Challenge on the weekend of June 7th to raise money for Reverse Rett and to keep Rett Syndrome research moving forward.

With the first UK gene therapy clinical trial for Rett syndrome recently being approved there has never been a more vital time to fundraise for Reverse Rett, who will be pivotal in working with the Pharmaceutical companies running the trial, funding the CIPP Rett Centre at King's College Hospital, which is open to everyone with Rett in the UK and who are dedicated to finding patients in the UK and adding them to the Rett Registry UK to ensure treatment, when it becomes available, is accessible to all.

We will be inspired to keep going by everyone living with Rett Syndrome and the team will be running in honour of Amber, Beth x 2, Nancy, Lottie, Ciara,

Please support the team and let's keep fighting Rett!

Team members (7)

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Donation summary

Total
£22,651.61
+ £4,850.23 Gift Aid
Online
£22,651.61

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