Thanks for taking the time to visit my JustGiving page i am eternally greatful.

I am taking part in the EDS social media challenge, posting everyday with prompts about how I my life is effected by this condition on a day to day basis so you can keep up to date on my Facebook profile.

In the past few years i have taken part in a sponsored swim and completed lengths throughout the month to raise my total. Unfortunately this year my health has been on a decline and i have not been well enough to commit to the swim but I have made a limited supply of jewellery with profits going to the charity and there will be a sponsored walk with a local walking group that I am hoping to attend later on the month *details to be confirmed *

This charity has helped me massively with information on help and support for living with ehlers-danlos syndrome. There are NO specific doctors in Northern Ireland and the waiting list for rheumatology is currently 8years so with out the work they do I would be completely lost and alone. The free resources to health and fitness as well as the friendly emails remind me I am not on my own. Thank you

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.