Story
2 of my best friends received the heartbreaking diagnosis in 2017 that their 2 amazing sons (Owen and George) have Duchenne Muscular Dystrophy. Kirsty, Nick, Owen & George have been and continue to be a complete inspiration in how they have been handling all the challenges this has thrown at them. Alongside managing the complications that Duchenne means for them all in day to day life they have managed to raise a phenomenal amount of money for Duchenne UK for research into a cure for the disease (where there is hope) and improved treatments to ensure that all the children impacted by this disease have the best possible quality of life and there is hope for every family impacted by this devastating disease.
I am taking part in the Duchenne Dash alongside Nick, Kirsty, Olivier, Adam and Chris. The dash is Duchenne UK's flagship event cycling from London to Paris in 24 hours raising money for this incredible charity which gives Duchenne sufferers and their families vitally important support as well as driving research to improve the lives of sufferers and ultimately find a cure for this dreadful disease.
Project GO is a family fund which supports the incredible work of Duchenne UK. DUK take an innovative and sharply focused approach to fighting Duchenne Muscular Dystrophy from every angle. This involves four key areas of work: funding groundbreaking medical research, accelerating access to treatments, improving lives through technology, and ensuring everyone in the DMD community is given the care and support they need.
Over the past 14 years, the Duchenne Dash has grown into Duchenne UK's biggest and most challenging fundraising event, raising more than £9 million for DMD research. Team Project GO completed their second Dash last year, and they are delighted to have now raised more than £35,000 for Duchenne UK. It was an incredibly inspiring event once again, and the need for more funds and awareness for all boys with Duchenne has never been more urgent. Nick has finally persuaded Kirsty to join him, Tom and Olivier, along with Project GO Dash debutants Adam and Chris, for the ride to Paris once again. Thank you all so much for your vital support.
