Unique - Rare Chromosome Disorder Support Group is a worldwide (based in the UK) charity that works with genetics teams and scientists to provide the most up-to-date information on all the different Chromosome and genetic syndromes. It's where our genetics consultant told us to go for information and support. They have given us so much support and knowledge, they've been truly wonderful.

Rare Chromosome and Genetic Syndrome Awareness Day is on the 25th June. I will be getting my steps in (and hopefully some donations too) to help further support this amazing charity and all the wonderful work they do for us. This is our way of saying big thank you to them all for their wonderful support. ❤️ xxxxx

I'm supporting their mission to raise £34,000 for Rare Chromo Day 2026