Thanks for taking the time to visit my JustGiving page.

My son Bastian has a rare chromosome disorder called Phelan-McDermid Syndrome (PMS). It's so rare that he is 1 in 4 million! PMS affects every aspect of his life. He has mobility difficulties including low-muscle tone, sleep problems, behavioural difficulties, medical needs and he is completely non-verbal. He will need additional support for the rest of his life. 

I haven't been running for very long. I started running in 2016 to help lose weight and since dropping 6 and half stone with Slimming World I have managed to maintain a healthy weight . I have been plagued with niggles and injuries. I broke my foot in Summer 2017 and have constant knee pain. It's less than 2 weeks to go now and I am feeling primed and ready. I feel quietly confident I will complete the 26.2 miles one way or another. You might spot me in my Wonder Woman race outfit! 

I am a determined woman and you know what they say about determined women!!! 

I run for Bastian! I run for PMSF UK.

The Phelan-McDermid Syndrome Foundation UK (PMSF UK) is a registered charity in the United Kingdom. PMSF UK provide a supportive inclusive community for those who have or know someone with Phelan-McDermid Syndrome (PMS). They provide family days and get-togethers and some limited support for additional therapies for the person with PMS.There are approximately 150 people who are diagnosed with PMS in the UK & Ireland and almost 1700 worldwide. Bastian is one of those rare people! All people with PMS have difficulty communicating. People diagnosed with PMS need additional care to support their daily lives.

Their website is www.pmsf.org.uk and you can contact them at info@pmsf.org.uk

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