P Smith

Paul & Dan's Page

Fundraising for CDKL5 UK
£400
raised of £100 target
by 21 supporters
Donations cannot currently be made to this page
Event: Welsh 3 Peaks Challenge, from 17 August 2019 to 18 August 2019
Participants: Daniel Troy-Pryde
CDKL5 UK

Verified by JustGiving

RCN 1149099
We are fighting to give our kids a chance to live long, happy and healthy lives

Story

Thanks for taking the time to visit my JustGiving page.

Both myself and best friend are taking on the 3 peaks challenge to raise awareness for CDKL5. This is both close to myself and my best friend. His little girl was diagnosed with this condition almost from birth and it has been a long and hard journey for both himself and his little girl to combat the conditions and make her quality of life the best it can possibly be.

The condition for myself hit home even more when I had three seizures within the last year, being an adult is easier to understand how this can impact on my everyday tasks and activities so the realism of the condition and rare strand of epilepsy truly means a lot to us both.

We appreciate any support you can give into the charity, from as little or as much as you like, it will go to a worthy cause which not only will help the charity, but also shows the support you are giving to people such as my friend's little girl suffering with this condition and everyone else who has been diagnosed.

For more information on this condition, please follow the link below:

http://www.curecdkl5.org/

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

About the charity

CDKL5 UK

Verified by JustGiving

RCN 1149099
CDKL5 deficiency disorder is a rare condition which manifests in the first few months of life with rare and complex epilepsy. Children and adults with CDKL5 require life long support. CDKL5 UK aims to support families through direct support and patient advocacy. #Togetherwearestronger

Donation summary

Total raised
£400.00
+ £77.50 Gift Aid
Online donations
£400.00
Offline donations
£0.00

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