Story
Thanks for taking the time to visit my JustGiving page.
Both myself and best friend are taking on the 3 peaks challenge to raise awareness for CDKL5. This is both close to myself and my best friend. His little girl was diagnosed with this condition almost from birth and it has been a long and hard journey for both himself and his little girl to combat the conditions and make her quality of life the best it can possibly be.
The condition for myself hit home even more when I had three seizures within the last year, being an adult is easier to understand how this can impact on my everyday tasks and activities so the realism of the condition and rare strand of epilepsy truly means a lot to us both.
We appreciate any support you can give into the charity, from as little or as much as you like, it will go to a worthy cause which not only will help the charity, but also shows the support you are giving to people such as my friend's little girl suffering with this condition and everyone else who has been diagnosed.
For more information on this condition, please follow the link below:
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.