Remembering Sophie Harling

Our fundraising achievements in memory of Sophie Harling

  • Remember

    Amount we’ve raised in Sophie’s memory $427.98

    Make a page for Sophie

    Our fundraising pages

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    Charities we're helping

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    ACT for SMA

    ACT for SMA

    Our latest donations

    17 skip to donations section
    • Donation by Neil Shepherd

      Well done Lee. A great effort for a brilliant cause. Sorry the donation is a little late. Cheers, Neil

      £50.00

      + £12.50 Gift Aid

    • Donation by Matt Ferguson

      Go for it Emma!! Worthy cause, well done x

      £10.00

      + £2.50 Gift Aid

    Events we're doing

    1 skip to events section
    • 22Oct

      Great South Run 2017

    Our fundraising pages 1

    • Emma-Clayton8

      Thanks for taking the time to visit our JustGiving page.

      Our close friends daughter, Sophie was born with Spinal Muscular Atrophy Type 1 - a rare genetic neurological condition which is defined by progressive and degenerative muscle weakness and a severely limited life expectancy. 80% of SMA Type 1 babies die before their first birthday. Due to her condition, Sophie struggled with head control and never managed to sit independently. She passed away suddenly on the 22nd October 2016, aged just 10 months.

      Sophie was diagnosed at 7 months after spending six weeks between their local hospital, Leighton, and Alder Hey. Wayne and Liz were determined that their remaining family time with Sophie would be spent making memories. Sophie travelled to Disneyland Paris, met Mickey's Mouse, went back to her Water Babies Classes and managed to charm everyone she met. She always had a cheeky smile and twinkle in her eye, and adored playing with people.

      They received huge support not only from Ward 17 at Leighton (our local hospital) but in Alder Hey and from the Ally Cadence Trust for Spinal Muscular Atrophy (a specialist charity for SMA Type 1 families). To help others in difficult situations, they are continuing to raise funds in Sophie's memory for ACT for SMA. 

      The Ally Cadence Trust for Spinal Muscular Atrophy works closely with UK families, providing specialist equipment and emotional support to families affected by this devastating condition. They are a small charity run by parents who lost their youngest child to the condition eight years ago. 

      To celebrate Sophie's life, Me, Lee and Wayne with a few more friends, will be running the Great South Run a year to the day after Sophie Passed.
      Please support us in reaching our target amount which will ensure ACT for SMA can continue to provide essential support to families all over the UK. 

      Thank you x

      Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

      icon for Running_Marathons

      Total so far:

      $395.27

    Donations made in memory of Sophie Harling17

    • Donation by Neil Shepherdto Emma's page on 23/10/2017

      Well done Lee. A great effort for a brilliant cause. Sorry the donation is a little late. Cheers, Neil

      £50.00

      + £12.50 Gift Aid

    • Donation by Matt Fergusonto Emma's page on 20/10/2017

      Go for it Emma!! Worthy cause, well done x

      £10.00

      + £2.50 Gift Aid

    • Donation by Lisa Bakerto Emma's page on 20/10/2017

      Good luck 😘😘

      £15.00

      + £3.75 Gift Aid

    • Donation by helen finchto Emma's page on 20/10/2017

      Good luck guys xx

      £10.00

      + £2.50 Gift Aid

    • Donation by Jordan Greenawayto Emma's page on 19/10/2017

      Best of luck! A fantastic cause.

      £25.00

      + £6.25 Gift Aid

    • Donation by Bryan Scaifeto Emma's page on 18/10/2017

      All the best to Lee & Emma for the Great South Run.

      £10.00

      + £2.50 Gift Aid

    • Donation by William Andersonto Emma's page on 18/10/2017

      Good luck Lee/Emma. I hope you reach your intended target for such a great cause. Billy

      £10.00

      + £2.50 Gift Aid

    • Donation by David Laneto Emma's page on 18/10/2017

      Good Luck!

      £5.00

      + £1.25 Gift Aid

    • Donation by Anonymousto Emma's page on 18/10/2017

    • Donation by Kay Leydonto Emma's page on 16/10/2017

      £10.00

      + £2.50 Gift Aid

    • Donation by Anonymousto Emma's page on 10/10/2017

      £20.00

      + £0.00 Gift Aid

    • Donation by Richard Leeto Emma's page on 10/10/2017

      All the best guys - great cause in memory of Sophie and all the hard work done by ACT SMA.

      £20.00

      + £5.00 Gift Aid

    • Donation by Donna Longhurstto Emma's page on 06/10/2017

      Good luck xXx

      £30.00

      + £7.50 Gift Aid

    • Donation by Izabella Chatwinto Emma's page on 26/09/2017

      Good Luck xxx

      £25.00

      + £6.25 Gift Aid

    • Donation by Jayne Leeto Emma's page on 26/09/2017

      Good luck Emma & Lee in raising money for this great cause & in memory of little Sophie 💕xx

      £20.00

      + £5.00 Gift Aid

    • Donation by Luke Thompsonto Emma's page on 18/09/2017

      Smash it as always guys! XX

      £25.00

      + £6.25 Gift Aid

    • Donation by Lesley Claytonto Emma's page on 17/09/2017

      Good luck to you all xx

      £30.00

      + £7.50 Gift Aid

    Charities we're helping 1

    • ACT for SMA

      ACT for SMA

      The Ally Cadence Trust provides support to families affected by Spinal Muscular Atrophy Type 1. Children with SMA Type 1 have limited movement and may have breathing difficulties. We offer many items of specialist equipment to them that are not readily available on the NHS

    Events we're doing 1

      • 22Oct

        Great South Run 2017

      • Running / marathons