Remembering Eilys Hartley

Our fundraising achievements in memory of Eilys Hartley

  • Remember

    Amount we’ve raised in Eilys’s memory $711.63

    Make a page for Eilys

    Our fundraising pages

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    Charities we're helping

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    ACT for SMA

    ACT for SMA

    Our latest donations

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    • Donation by Emma Moore

      Hi Emma, one of my lovely colleagues wore purple at an external meeting on June 12th and had a whip round and just remembered to bring it in! So a bit late but here we are :) Em x

      £17.18

      + £4.30 Gift Aid

    • text donation

      Donation by

      £5.00

      + £0.00 Gift Aid

    Events we're doing

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    Our fundraising pages 1

    • wearpurpleforeilys2018

      Eilys looked good in most things but she looked particularly good in purple. It was definitely her colour so in honour of her on what should have been her 3rd birthday on 12th June I'd like you to wear purple and then donate just £1 to the Ally Cadence Trust for Spinal Muscular Atrophy. This charity allowed us to go on so many amazing adventures with Eilys by using the car seat that they lent to us. They allowed us to record some brilliant memories using the GoPro that they lent us. They sent us on lovely family holiday to Center Parcs where both Dylan and Eilys were able to make some wonderful memories together and we were able to chill as a family. They gave us medical equipment to help us monitor Eilys condition. They gave us advice and support throughout her illness and after she died but most of all Emma and Karl gave us friendship. They really are an incredible charity and Eilys would be so proud that we were still supporting them in her name.

      A bit about Eilys and our journey...

      My beautiful daughter Eilys was diagnosed with Spinal Muscular Atrophy type 1 just before christmas 2015. We had loads of wonderful adventures with her and packed loads into her short life. She went on a boat, she had lots of lovely holidays with her family, she went to the zoo, to farms and had a smile on her face every day. She sadly passed away on 28th June 2016 just 2 weeks after her 1st birthday.

      After we had this devastating diagnosis we got in contact with the Ally Cadence Trust for SMA and they were so incredibly h.elpful. Emma and Karl came to visit us and talk to us about their story. They had lost their daughter, Ally, 8 years ago to SMA type 1 and they set up the charity to help families with the same diagnosis as they were so let down by the charities that were suppose to help them and by the health care services and they didn't want any other families to go through it alone. Luckily for us we had an amazing bunch of people helping us from the NHS and Eilys received the most incredible support and care. Unfortunately there are a few things that the NHS can't put in place quickly like assessments for specialised car seats and pushchairs etc and this is where The Ally Cadence Trust stepped in. ACT gave us a specialised car seat so that Eilys could lie flat in that car (really important for babies with SMA type 1 as they can't hold up their heads and it aids their breathing), the wheels for the car seat, a pushchair, an apnea monitor (that we could attach to her nappy and it would alarm if Eilys stopped breathing), an oxygen saturation monitor (a little clip on her toe so we could see the concentration of oxygen in her body so we would know if Eilys was in difficulty), fibre optic string lights for Eilys to play with, a box of appropriate toys and a GoPro (for videoing in the bath, in the swimming pool etc etc). All these things were so incredibly helpful and improved Eilys' quality of life no end. But they provide more than just "stuff" Emma and Karl are also on the end of the phone 24hrs a day 7 days a week for families to contact to have someone to talk to which is so incredible and helpful. Knowing that there was someone there to talk to us who had been in the same situation was just brilliant. Since Eilys died they have been just as supportive to us as a family.

      Thanks for taking the time to visit my JustGiving page.

      Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.



      icon for InMemory

      Total so far:

      $669.44

    Donations made in memory of Eilys Hartley71

    • Donation by Emma Mooreto Joe's page on 16/07/2018

      Hi Emma, one of my lovely colleagues wore purple at an external meeting on June 12th and had a whip round and just remembered to bring it in! So a bit late but here we are :) Em x

      £17.18

      + £4.30 Gift Aid

    • text donation

      Donation by to Joe's page on 28/06/2018

      £5.00

      + £0.00 Gift Aid

    • text donation

      Donation by to Joe's page on 27/06/2018

      £10.00

      + £0.00 Gift Aid

    • text donation

      Donation by to Joe's page on 17/06/2018

      £2.00

      + £0.50 Gift Aid

    • text donation

      Donation by to Joe's page on 17/06/2018

      £10.00

      + £2.50 Gift Aid

    • text donation

      Donation by to Joe's page on 17/06/2018

      £2.00

      + £0.50 Gift Aid

    • Donation by Anma Teeto Joe's page on 15/06/2018

      With love and best wishes from the Macmillan Wales partnership team, we rocked wearing purple at our team building day! X

      £12.00

      + £3.00 Gift Aid

    • Donation by Anma Teeto Joe's page on 15/06/2018

      With love and best wishes from the Macmillan Wales team, we rocked the purple attire at our team building day!

      £12.00

      + £3.00 Gift Aid

    • text donation

      Donation by to Joe's page on 15/06/2018

      £3.00

      + £0.00 Gift Aid

    • Donation by Mark Webberto Joe's page on 14/06/2018

      £10.00

      + £2.50 Gift Aid

    • Donation by Janet Palmerto Joe's page on 13/06/2018

      £10.00

      + £2.50 Gift Aid

    • Donation by "A team Hinckley"to Joe's page on 13/06/2018

      Money raised by Adult Social Care PI team Hinckley, organised by Cassie Corbett. A very big thank you to all involved. xxxx

      £121.05

      + £0.00 Gift Aid

    • Donation by Sally Pageto Joe's page on 13/06/2018

      £5.00

      + £1.25 Gift Aid

    • Donation by Pete & Maggieto Joe's page on 12/06/2018

      For Eilys with all our love xx

      £30.00

      + £7.50 Gift Aid

    • Donation by David Eganto Joe's page on 12/06/2018

      £4.00

      + £1.00 Gift Aid

    • Donation by Kate Rostanceto Joe's page on 12/06/2018

      Love seeing all the purple power. Happy birthday little one!

      £3.00

      + £0.75 Gift Aid

    • Donation by Valerie Hartleyto Joe's page on 12/06/2018

      For Eilys with lots of love from Grandad and Mmmom xxx

      £30.00

      + £7.50 Gift Aid

    • Donation by Anonymousto Joe's page on 12/06/2018

    • text donation

      Donation by to Joe's page on 13/06/2018

      £2.00

      + £0.00 Gift Aid

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      Donation by to Joe's page on 12/06/2018

      £2.00

      + £0.00 Gift Aid

    • text donation

      Donation by Shelley Wildto Joe's page on 12/06/2018

      £2.00

      + £0.50 Gift Aid

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      Donation by to Joe's page on 12/06/2018

      £2.00

      + £0.00 Gift Aid

    • text donation

      Donation by Zoe Thomasto Joe's page on 12/06/2018

      I'm wearing purple for Eilys!

      £1.00

      + £0.25 Gift Aid

    • Donation by Hannah Cresswellto Joe's page on 12/06/2018

      £5.00

      + £0.00 Gift Aid

    • Donation by Emma Mooreto Joe's page on 12/06/2018

      Em & some folk at Macmillan Wales sending lots of love xx

      £14.29

      + £3.57 Gift Aid

    • text donation

      Donation by to Joe's page on 12/06/2018

      £1.00

      + £0.00 Gift Aid

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      Donation by Gill Baxterto Joe's page on 12/06/2018

      £2.00

      + £0.50 Gift Aid

    • text donation

      Donation by Simon Preeceto Joe's page on 12/06/2018

      £1.00

      + £0.25 Gift Aid

    • text donation

      Donation by to Joe's page on 12/06/2018

      £5.00

      + £1.25 Gift Aid

    • Donation by Helen Muskerto Joe's page on 12/06/2018

      Love from Helen, Simon and Blake xxx

      £10.00

      + £2.50 Gift Aid

    • Donation by Jan Andrewsto Joe's page on 12/06/2018

      All ways had a smile for everyone .Happy 3rd birthday to a very special angel xx

      £5.00

      + £1.25 Gift Aid

    • Donation by Vicky Tamsto Joe's page on 12/06/2018

      £10.00

      + £0.00 Gift Aid

    • Donation by Stevie Johnsonto Joe's page on 12/06/2018

      Thinking of you and your family ❤️

      £5.00

      + £1.25 Gift Aid

    • Donation by Heather Tunstallto Joe's page on 12/06/2018

      £5.00

      + £0.00 Gift Aid

    • Donation by Paula Whitworthto Joe's page on 12/06/2018

    • Donation by Michelle Bentleyto Joe's page on 12/06/2018

      Remembering Eilys on her 3rd Birthday, never far from our thoughts. Thinking of you all, lots of love from the Melksham Mateys xx

      £20.00

      + £5.00 Gift Aid

    • Donation by The Kendrick’s 💜to Joe's page on 12/06/2018

      £10.00

      + £2.50 Gift Aid

    • Donation by Anonymousto Joe's page on 12/06/2018

      💜

    • Donation by Lisa Gallimoreto Joe's page on 12/06/2018

      A little to help continue the valuable support to families that Eilys and her family received

      £10.00

      + £2.50 Gift Aid

    • Donation by Maureen Muskerto Joe's page on 11/06/2018

      I'll be wearing purple for Eilys xx

      £5.00

      + £1.25 Gift Aid

    • text donation

      Donation by to Joe's page on 12/06/2018

      £1.00

      + £0.00 Gift Aid

    • text donation

      Donation by LEAH Williamsto Joe's page on 12/06/2018

      £10.00

      + £2.50 Gift Aid

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      Donation by to Joe's page on 12/06/2018

      £5.00

      + £1.25 Gift Aid

    • text donation

      Donation by Mike Garrickto Joe's page on 12/06/2018

      :)

      £2.00

      + £0.50 Gift Aid

    • text donation

      Donation by to Joe's page on 12/06/2018

      £1.00

      + £0.25 Gift Aid

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      Donation by to Joe's page on 12/06/2018

      £3.00

      + £0.00 Gift Aid

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      Donation by to Joe's page on 12/06/2018

      £1.00

      + £0.25 Gift Aid

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      Donation by to Joe's page on 12/06/2018

      £1.00

      + £0.00 Gift Aid

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      Donation by to Joe's page on 12/06/2018

      £1.00

      + £0.25 Gift Aid

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      Donation by to Joe's page on 12/06/2018

      £1.00

      + £0.00 Gift Aid

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      Donation by to Joe's page on 12/06/2018

      £1.00

      + £0.00 Gift Aid

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      Donation by to Joe's page on 12/06/2018

      £5.00

      + £1.25 Gift Aid

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      Donation by to Joe's page on 12/06/2018

      £3.00

      + £0.75 Gift Aid

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      Donation by to Joe's page on 11/06/2018

      £5.00

      + £1.25 Gift Aid

    • text donation

      Donation by Rachel Baylyto Joe's page on 11/06/2018

      £5.00

      + £1.25 Gift Aid

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      Donation by to Joe's page on 12/06/2018

      £5.00

      + £0.00 Gift Aid

    • text donation

      Donation by Judith Taylorto Joe's page on 12/06/2018

      For Eilys xxx

      £5.00

      + £1.25 Gift Aid

    • text donation

      Donation by to Joe's page on 12/06/2018

      £5.00

      + £0.00 Gift Aid

    • text donation

      Donation by to Joe's page on 12/06/2018

      £5.00

      + £0.00 Gift Aid

    • text donation

      Donation by to Joe's page on 12/06/2018

      £1.00

      + £0.00 Gift Aid

    • text donation

      Donation by to Joe's page on 11/06/2018

      £1.00

      + £0.25 Gift Aid

    • text donation

      Donation by Rhiannon Cassidyto Joe's page on 10/06/2018

      £1.00

      + £0.25 Gift Aid

    • Donation by Panna Chauhanto Joe's page on 08/06/2018

      £5.00

      + £1.25 Gift Aid

    • text donation

      Donation by to Joe's page on 08/06/2018

      £2.00

      + £0.50 Gift Aid

    • Donation by Georgiato Joe's page on 07/06/2018

      We'll be wearing purple for Eilys :) Georgia, Martin & Henry

      £10.00

      + £0.00 Gift Aid

    • text donation

      Donation by to Joe's page on 07/06/2018

      £5.00

      + £0.00 Gift Aid

    • text donation

      Donation by to Joe's page on 06/06/2018

      £1.00

      + £0.00 Gift Aid

    • text donation

      Donation by to Joe's page on 06/06/2018

      £5.00

      + £0.00 Gift Aid

    • text donation

      Donation by to Joe's page on 06/06/2018

      £1.00

      + £0.00 Gift Aid

    • text donation

      Donation by to Joe's page on 06/06/2018

      £5.00

      + £0.00 Gift Aid

    • Donation by Anonymousto Joe's page on 15/05/2018

      £10.00

      + £2.50 Gift Aid

    Charities we're helping 1

    • ACT for SMA

      ACT for SMA

      The Ally Cadence Trust provides support to families affected by Spinal Muscular Atrophy Type 1. Children with SMA Type 1 have limited movement and may have breathing difficulties. We offer many items of specialist equipment to them that are not readily available on the NHS

    Events we're doing 0