Remembering Sophie Harling

Our fundraising achievements in memory of Sophie Harling

  • Remember

    Amount we’ve raised in Sophie’s memory $607.35

    Make a page for Sophie

    Our fundraising pages

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    Charities we're helping

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    ACT for SMA

    ACT for SMA

    Our latest donations

    30 skip to donations section
    • Donation by Robert & Sara

      Well done on the awesome run times!

      £15.00

      + £3.75 Gift Aid

    • Donation by Ian Williams

      £20.00

      + £0.00 Gift Aid

    Events we're doing

    1 skip to events section
    • 21Oct

      Simplyhealth Great South Run 2018

    Our fundraising pages 1

    • SophieMakesADifference2018

      Our daughter Sophie was born with Spinal Muscular Atrophy Type 1 - a rare genetic neurological condition which is defined by progressive and degenerative muscle weakness and a severely limited life expectancy. 80% of SMA Type 1 babies die before their first birthday. IT is a rare condition affecting just 100 babies a year in the UK despite 1 in 40 people carrying the defective gene.  Due to her condition, Sophie struggled with head control and never managed to sit independently. She passed away suddenly on the 22nd October 2016, aged just 10 months.

      Sophie was diagnosed at 7 months after being taken into hospital with feeding issues. We spent six weeks between our local hospital, Leighton, and Alder Hey learning how to care for Sophie and work all the medical equipment she needed. We arrived home in late August 2016 determined that our remaining family time would be spent making memories. Sophie travelled to Disneyland Paris, met Mickey's Mouse, went back to her Water Babies Classes and managed to charm everyone she met. She always had a cheeky smile and twinkle in her eye, and adored playing with people.

      We received huge support not only from Ward 17 at Leighton (our local hospital) but in Alder Hey and from the Ally Cadence Trust for Spinal Muscular Atrophy (a specialist charity for SMA Type 1 families). To help others who find themselves in this difficult and life changing situation, we are continuing to raise funds in Sophie's memory for ACT for SMA. 

      The Ally Cadence Trust for Spinal Muscular Atrophy  (ACT for SMA) works closely with UK families, providing specialist equipment and emotional support to families affected by this devastating condition. They provide essential non-medical equipment and visit affected families at home or in hospital to provide emotional support. This support continues after the loss of the child. They are a small charity run by parents who lost their youngest child, Ally Cadence, to the condition nine years ago. They support a third of all UK SMA Type 1 cases every year. 

      To celebrate Sophie's life, Wayne will be running the Great South Run two years after we lost Sophie. He will be joined by family, friends and members of Sophie's medical team both in the race and cheering on the sidelines. Please support us in reaching our target amount which will ensure ACT for SMA can continue to provide essential support to families devastated by SMA Type 1 in the UK. 

      Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

      icon for Running_Marathons

      Total so far:

      $577.06

    Donations made in memory of Sophie Harling30

    • Donation by Robert & Sarato Elizabeth's page on 27/10/2018

      Well done on the awesome run times!

      £15.00

      + £3.75 Gift Aid

    • Donation by Ian Williamsto Elizabeth's page on 23/10/2018

      £20.00

      + £0.00 Gift Aid

    • Donation by Nathanael Wheelerto Elizabeth's page on 22/10/2018

      Awesome... well done!

      £20.00

      + £5.00 Gift Aid

    • Donation by Patrick Ashbyto Elizabeth's page on 22/10/2018

      £10.00

      + £0.00 Gift Aid

    • Donation by Emily Derbyshireto Elizabeth's page on 21/10/2018

      Well done Wayne. Lots of love from Bristol. Xx

      £10.00

      + £0.00 Gift Aid

    • Donation by Marion Thomasto Elizabeth's page on 21/10/2018

      Better late than never! Well done Team Sophie!!

      £10.00

      + £0.00 Gift Aid

    • Donation by Sarah Loveto Elizabeth's page on 21/10/2018

      Well done Wayne!! :) X

      £15.00

      + £3.75 Gift Aid

    • Donation by Libby Kate Phillipsto Elizabeth's page on 21/10/2018

      Good luck today Wayne! xx

      £10.00

      + £2.50 Gift Aid

    • Donation by Sudeep Ranato Elizabeth's page on 21/10/2018

      All the best for the run!

      £10.00

      + £2.50 Gift Aid

    • Donation by Rachel Marshallto Elizabeth's page on 21/10/2018

      Good luck Wayne.

      £20.00

      + £5.00 Gift Aid

    • Donation by Phillip Gillinghamto Elizabeth's page on 21/10/2018

      See you later, hope it goes well.

      £10.00

      + £2.50 Gift Aid

    • Donation by Katie Ratcliffeto Elizabeth's page on 20/10/2018

      £5.00

      + £1.25 Gift Aid

    • Donation by Ian Wrightto Elizabeth's page on 20/10/2018

      Hope the run goes ok. Best wishes from the Wright family

      £100.00

      + £25.00 Gift Aid

    • Donation by Anonymousto Elizabeth's page on 20/10/2018

      Keep up the good work.

      £20.00

      + £5.00 Gift Aid

    • Donation by Emma Sudburyto Elizabeth's page on 18/10/2018

      £5.00

      + £0.00 Gift Aid

    • Donation by R BELLto Elizabeth's page on 18/10/2018

      £10.00

      + £2.50 Gift Aid

    • Donation by Amyto Elizabeth's page on 16/10/2018

      £5.00

      + £0.00 Gift Aid

    • Donation by Phillip Gillinghamto Elizabeth's page on 16/10/2018

      Hopefully see you there.

      £10.00

      + £2.50 Gift Aid

    • Donation by karen shenton-kerinto Elizabeth's page on 09/10/2018

      £5.00

      + £1.25 Gift Aid

    • Donation by Angela Vesseyto Elizabeth's page on 08/10/2018

      Good luck, team Sophie. Proud to support you and ACT for SMA.

      £30.00

      + £7.50 Gift Aid

    • Donation by Elizabeth Harlingto Elizabeth's page on 08/10/2018

      Good luck Wayne Alison

      £5.00

      + £0.00 Gift Aid

    • Donation by Sam Raeburnto Elizabeth's page on 06/10/2018

      Good luck Wayne!

      £10.00

      + £2.50 Gift Aid

    • Donation by Eleanor Bulloughto Elizabeth's page on 05/10/2018

      £10.00

      + £2.50 Gift Aid

    • Donation by Joanne Moranto Elizabeth's page on 05/10/2018

      £10.00

      + £0.00 Gift Aid

    • Donation by Ben Guilfoyleto Elizabeth's page on 05/10/2018

      £10.00

      + £2.50 Gift Aid

    • Donation by Elisha Sprostonto Elizabeth's page on 05/10/2018

      Sorry it couldn't have been more! All my love xx

      £10.00

      + £0.00 Gift Aid

    • Donation by Michael Stanleyto Elizabeth's page on 04/10/2018

      Good luck wayne

      £10.00

      + £0.00 Gift Aid

    • Donation by Elizabeth Harlingto Elizabeth's page on 01/10/2018

      Good luck from Julie B

      £10.00

      + £0.00 Gift Aid

    • Donation by Ed McCauleyto Elizabeth's page on 24/09/2018

      Good luck Wayne

      £30.00

      + £7.50 Gift Aid

    • Donation by Jayne Leeto Elizabeth's page on 17/09/2018

      Good luck Wayne - you can do it for Sophie 💕💕xx

      £20.00

      + £5.00 Gift Aid

    Charities we're helping 1

    • ACT for SMA

      ACT for SMA

      The Ally Cadence Trust provides support to families affected by Spinal Muscular Atrophy Type 1. Children with SMA Type 1 have limited movement and may have breathing difficulties. We offer many items of specialist equipment to them that are not readily available on the NHS

    Events we're doing 1

      • 21Oct

        Simplyhealth Great South Run 2018

      • Running / marathons